Friday 30 September 2011

my MS dictionary

hypoesthesia  -numbness
parathesia - pricking
dysesthesia - intense pricking
ataxia -  balance
dysarthia - speech
nystagmus - eyes
uthoffs phenomenon - heating
myokemia - muscle tics
MS hug- girdle band sensation - intercostal muscles paresthesia
mild pharyngeal phase  dysphagia - swallowing
mild asymmetry on lateralisation, face
Peripheral neuropathies - burning feet syndrome.
Depression


its true, MS truly sucks

Tuesday 27 September 2011

word confuddles

Two things that really upset me the most.
1. Correcting my words or sentences even though you uinderstand what I mean. I have MS. I reverse words I join words, I say things like mob flash instead of flash mob. Dont correct me if you understand. Its insulting. Recent word flips include: troll shoes came out as soul shoes. the terrace conference centre came out as terrance. For work came out as fork. Tall boy as toy. Waikanae and otaki as Waitaki. Conspiracy theorists as conspiracy therapists. If I laugh, its funny, if I do not it is because I find this upsetting and correcting me makes it worse.
2. Assuming you know the limits of my music ability without checking.